National Pku Alliance

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1533 Kings Hill Dr

Tomahawk, WI 54487

+1 (715) 437-0477

https://www.npkua.org

The National PKU Alliance (NPKUA) is an independent organization dedicated to advancing the treatment and monitoring of Phenylketonuria (PKU), a rare genetic disorder. Through advocacy, research, and community support, NPKUA aims to improve the lives of individuals affected by PKU and foster a collaborative environment for families and healthcare providers.

With initiatives such as the NPKUA Registry and various fundraising events like Move Your Pheet, the organization actively engages the community to drive progress in PKU treatment options. NPKUA also provides valuable resources, including guides and support programs, to assist patients and caregivers in navigating the complexities of living with PKU.

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