One Roof Foundation

The Jain Foundation Inc., based in Seattle, WA, is dedicated to discovering a cure for dysferlinopathy, a severe muscle disorder also known as LGMD2B, LGMDR2, and Miyoshi Myopathy 1. By fostering innovative research, developing critical resources, and conducting educational programs, the foundation mobilizes a collaborative network of researchers, clinicians, patients, and industry partners to drive meaningful advancements in treatment options. With a focus on enhancing patient care, the Jain Foundation has invested over 45 million dollars into research and drug development, while curating a global registry for individuals affected by dysferlinopathy to facilitate clinical trial participation. Through its commitment to impactful funding and innovative projects, the foundation is making significant strides toward improving the lives of those affected by this condition. Generated from the website

The Jain Foundation, based in Seattle, WA, is a non-profit organization dedicated to advancing research and finding treatments for dysferlinopathy, a rare genetic muscle disorder. They support a wide range of initiatives, including funding studies, providing research tools and resources, organizing conferences and webinars, and offering travel grants for researchers. The foundation also works closely with patients and clinicians, providing information, support, and advocacy for those affected by dysferlinopathy. With a mission to improve the understanding and management of dysferlinopathy, the Jain Foundation collaborates with industry partners and promotes collaborative research opportunities. They maintain a dysferlin registry, facilitate clinical trials and studies, and offer helpful links and resources for healthcare professionals. Through their dedicated efforts, the Jain Foundation strives to make a positive impact on the lives of individuals with dysferlinopathy and their families.Generated from the website