100 Per Survey

Rare Patient Voice connects patients and caregivers with opportunities to voice their opinions through surveys and interviews, aimed at improving medical products and services. Founded by Wes Michael, the organization has been actively involved in rare and orphan diseases since 1998, facilitating patient engagement in research and earning rewards for their participation.

With a focus on collaboration, Rare Patient Voice partners with advocacy groups, researchers, and pharmaceutical companies to enhance the understanding of patient experiences and needs. Through its initiatives, it empowers individuals to share their stories, ensuring their voices contribute to meaningful advancements in healthcare.

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