Turner Syndrome Society of the United States

The Turner Syndrome Society of the United States (TSSUS) is the largest organization globally dedicated to supporting the Turner syndrome community, offering a wealth of resources for individuals, families, and medical professionals. With a mission to advance knowledge, facilitate research, and provide support, TSSUS connects members through conferences, support groups, and educational materials tailored to the unique needs of those affected by Turner syndrome.

TSSUS actively engages in advocacy efforts, including pushing for the continuation of telehealth services and launching surveys to gather data on Turner syndrome during pregnancy and early life. The organization fosters a sense of belonging and community through various initiatives, including local Butterfly Walks and private social media groups, allowing members to share experiences and insights.

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