Dysautonomia Advocacy Foundation

Specialties

Working to improve the quality of life for patients and their families through integrated clinical practice, education and research. Mission The Dysautonomia Advocacy Foundation is an organization consisting of an open forum dedicated to the dissemination of information regarding the group of disorders organized under the common heading of dysautonomia. The Dysautonomia Advocacy Foundation wishes to be part of the greater effort that allows connections to credible sources of information regarding diagnostic criteria and treatment opportunities. The open forum design encourages those who suffer with the symptoms characteristic of dysautonomia to share their experience with their own illness, leading to a greater individual and related community understanding. These goals are in accord with the fact that this is a complex group of illnesses, the nature of which is not well understood. In that established diagnostic criteria are limited, the incidence of the various forms is not known. These realities contribute to a lack of focused sophistication within the medical community making it difficult for many patients to find adequate care or even validation. The Dysautonomia Advocacy Foundation consists of a director, herself a patient with dysautonomia, and a small advisory group consisting of community business and professional leaders who have agreed to serve without compensation...