Sotos Syndrome Support Association

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+1 (888) 246-7772
http://sotossyndrome.org

The Sotos Syndrome Support Association (SSSA) was established in 1988 and is comprised of families, physicians, genetic counselors, and health care agencies worldwide. The organization aims to provide a social support environment for professionals and families affected by Sotos syndrome, offering program services and a platform for exchanging ideas and coping strategies.

Run by volunteers who have personal connections to individuals with Sotos syndrome, the SSSA facilitates member interactions through monthly newsletters, access to a members-only web portal, and opportunities to participate in conferences and seminars. Membership includes benefits such as receiving the monthly email newsletter, SSSA Notes, and connecting with a network of individuals dedicated to supporting those impacted by Sotos syndrome.

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United States›Sotos Syndrome Support Association

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