Alagille Syndrome Alliance

The Alagille Syndrome Alliance (ALGSA) is a compassionate nonprofit organization dedicated to supporting individuals, caregivers, and families impacted by Alagille Syndrome (ALGS) worldwide. With a focus on improving lives through collaboration, education, and empowerment, ALGSA mobilizes resources and fosters scientific research to drive innovation and uncover better treatment options.

Committed to advocacy and raising awareness, the ALGSA engages with key stakeholders—including patients, families, healthcare professionals, and researchers—to enhance understanding and funding for ALGS. Through family events and a robust support system, the organization aims to connect families and create a strong sense of community among those affected by this complex genetic disorder.

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