International Retts Syndrome

International Rett Syndrome Foundation (IRSF) is a non-profit organization based in Cincinnati, OH, dedicated to accelerating research and providing support for individuals and families affected by Rett syndrome. Rett syndrome is a rare genetic neurological disorder that severely impairs various aspects of life, particularly speech, hand use, and coordination. IRSF is committed to improving care, finding treatments, and ultimately, a cure for Rett syndrome through innovative research, clinical trials, and advocacy.

With a mission to empower families and transform lives, IRSF offers a range of resources, including the Rett Syndrome Registry, which builds upon the success of the Natural History Study, and My Rett Ally, a web app that simplifies and organizes important medical and care information. Through fundraising efforts and community involvement, IRSF aims to create a world without Rett syndrome, providing hope and support for those affected by this challenging disorder.

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