VHL

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265 W 37th St
New York, NY 10018
+1 (212) 354-4004
https://www.vhl.org

The VHL Alliance is dedicated to improving the quality of life and health outcomes for individuals impacted by von Hippel-Lindau (VHL) disease. They focus on building an inclusive community that connects patients, families, and caregivers to educational resources, treatment options, and advancements in medical research.

Since the identification of the VHL gene in 1993, the organization has made significant strides in understanding and managing the disease, leading to the FDA approval of the first systemic therapy for VHL. Their commitment is driven by research, community participation, and ongoing advocacy to support those affected by this genetic condition.

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