The XLH Network, Inc.
The XLH Network, Inc. is a global patient support organization dedicated to individuals and families affected by X-Linked Hypophosphatemia (XLH), a rare genetic disorder impacting approximately one in 20,000 people. The organization focuses on promoting awareness, providing educational resources, and creating a supportive community for those living with XLH, facilitating connections that foster understanding and advocacy.
With a mission centered on achieving early diagnosis, effective treatment, and an improved quality of life for those impacted, the XLH Network serves as a vital hub for information and support. Through events like XLH Day and various outreach initiatives, the network brings together individuals and families, helping to combat the challenges associated with this rare condition.
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