National Marfan Foundation

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22 Manhasset Ave
Port Washington, NY 11050
+1 (516) 883-8712
https://marfan.org

The Marfan Foundation, based in Port Washington, NY, is dedicated to driving research, education, and support for individuals affected by Marfan syndrome and related genetic vascular conditions. Through a community-focused approach, the foundation aims to improve health outcomes, save lives, and empower those living with these conditions.

Offering resources for both patients and healthcare professionals, the foundation provides accessible information and support tools to aid individuals on their medical journey. With a robust calendar of events, including conferences and camps, the foundation fosters connection and advocacy within the community.

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