Hunters Hope Foundation

Hunter's Hope Foundation is a non-profit organization based in Orchard Park, NY, dedicated to providing hope through education, research, and family care for Leukodystrophies and Newborn Screening. Their mission is to screen every newborn for Krabbe Disease and other Leukodystrophies, ensuring early detection and lifesaving treatments for affected children.

With over twenty years of relentless advocacy, Hunter's Hope Foundation, along with the Kelly Family and the Krabbe Community, played a pivotal role in the Federal Newborn Screening Advisory Committee's decision to add Krabbe Disease to the Recommended Newborn Screening Panel. This landmark moment brings hope to children affected by this disease and signifies a significant step towards their goal of screening every newborn for Leukodystrophies.

Generated from the website