Debra of America

Debra of America is a national nonprofit organization committed to enhancing the lives of individuals impacted by Epidermolysis Bullosa (EB), a rare genetic connective tissue disorder characterized by exceptionally fragile skin. Through a comprehensive approach that includes direct-to-patient programs, education, advocacy, and funding for research, Debra aims to foster meaningful change for those living with EB.

With a focus on patient support, Debra provides essential services such as wound care distribution, legal aid, and mentorship programs, alongside funding groundbreaking research leading to U.S. FDA-approved treatments for EB. Their initiatives, including the Smile Fund and biennial debra Care Conference, create a supportive community and offer a platform for education and connection among EB families.

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