Debra

Debra of America is a national nonprofit organization dedicated to enhancing the lives of individuals impacted by Epidermolysis Bullosa (EB), a rare genetic disorder characterized by fragile skin that easily blisters and tears. The organization integrates direct-to-patient programs, educational initiatives, advocacy efforts, and research funding to drive meaningful change in the EB community.

With a commitment to supporting patients and families, Debra provides essential services such as wound care distribution, educational resources, and mentorship programs, as well as fulfilling mini-wishes through its Smile Fund. The organization has also been instrumental in the U.S. FDA approval of multiple treatments for EB, reflecting its dedication to advancing care and support for those affected by this debilitating condition.

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