Prisms-Parents-Researchers

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403 Haddon Ave
Camden, NJ 08103
+1 (972) 231-0035
https://www.prisms.org

PRISMS is a non-profit organization based in Camden, NJ, dedicated to providing information and support to families of individuals with Smith-Magenis Syndrome (SMS). They sponsor research and foster partnerships with professionals to increase awareness and understanding of SMS. PRISMS offers a range of resources, including education materials, clinics, and conferences, to help individuals and their families navigate the challenges of living with SMS.

Smith-Magenis Syndrome is a rare neurobehavioral disorder characterized by physical, behavioral, and developmental features. It is caused by specific genetic changes on chromosomal region 17p11.2. While there is no cure for SMS, PRISMS provides information on available treatments and medications that can help manage symptoms. With an estimated incidence of 1 in 15,000 to 1 in 25,000 births, PRISMS aims to increase awareness and improve diagnosis rates for this under-recognized syndrome.

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