Neuromuscular Disease Foundation

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The Neuromuscular Disease Foundation (NDF) in Beverly Hills, CA is dedicated to enhancing the quality of life for individuals living with GNE Myopathy. Through their International Gene Therapy Development Program (IGTDP), NDF funds critical research focused on treatments and a cure for this condition. They also provide advocacy, education, and outreach to support patients and their families. NDF's Virtual Learning Library offers a wealth of resources, including recordings of their GNEM Speaker Series events, podcasts, and webinars, providing valuable information about GNE Myopathy and the work of the foundation. With a global impact, NDF serves thousands of individuals annually and has funded millions of dollars towards GNEM science programs.

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