Center for Ehlers Danlos Syndrome Alliance
The Center for Ehlers Danlos Syndrome Alliance (CEDSA) in Cass City, MI, is dedicated to providing advocacy and support for individuals affected by Ehlers Danlos Syndrome (EDS). They offer resources and guidance for families navigating educational challenges, including assistance with Individualized Education Programs (IEPs) and addressing bullying in schools.
CEDSA also focuses on raising awareness about EDS and related conditions, such as Postural Orthostatic Tachycardia Syndrome (POTS), while combating misconceptions that often lead to misdiagnoses. Their commitment to advocacy ensures that families receive the necessary support to secure a Free Appropriate Public Education (FAPE) for their children with EDS.
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