Neurofibromatosis Northeast
Neurofibromatosis Northeast, based in Burlington, MA, is dedicated to supporting individuals and families affected by neurofibromatosis (NF) through various programs, resources, and community engagement initiatives. The organization plays a pivotal role in funding research, providing educational resources, and creating opportunities for patients and their families to connect and share their experiences.
With a strong emphasis on empowerment, Neurofibromatosis Northeast organizes events like the Steps2Cure NF Walk Run Series and Coast to the Cure cycling event, which not only raise vital funds but also foster a sense of community among participants. Their additional offerings include scholarships, peer support programs, and a Young Adult Empowerment Series to help young adults navigate their journey with neurofibromatosis.
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