FSHD Society

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75 N Main St
Randolph, MA 02368
+1 (781) 301-6060
https://www.fshdsociety.org

The FSHD Society is the leading global advocacy and research organization dedicated to facioscapulohumeral muscular dystrophy (FSHD), one of the most common forms of muscular dystrophy. Through relentless advocacy, fundraising, and support, the Society aims to empower FSHD families while accelerating research efforts and developing potential treatments.

Committed to enhancing the lives of those affected by FSHD, the Society offers a wealth of resources, including educational materials, community support, and access to clinical trials. Their mission envisions a future free from FSHD, backed by a network of partners that foster collaboration and compassion within the community.

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