Coalition Usher Syndrome

63 Great Rd Ste 207
Maynard, MA 01754

The Usher Syndrome Coalition, based in Maynard, MA, is dedicated to supporting individuals and families affected by Usher syndrome, a genetic condition that causes hearing loss and vision impairment. Through advocacy, research, and community engagement, the Coalition aims to raise awareness and improve the quality of life for those impacted by this condition.

Offering a range of resources, including educational materials, support groups, and events, the Coalition fosters connections among families, researchers, and healthcare professionals. Their initiatives also focus on promoting genetic testing and advancing scientific research to better understand and treat Usher syndrome.

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