Coalition Syndrome Research

The Usher Syndrome Coalition is a dedicated organization focused on supporting individuals and families affected by Usher syndrome, the most common genetic cause of combined deafness and blindness. With a mission to raise awareness, accelerate research, and provide comprehensive resources, the Coalition bridges the gap between researchers and the Usher community.

Through initiatives such as the USH Trust, which hosts the largest international Usher syndrome database, and partnerships with various organizations, the Coalition fosters education, community connections, and advocacy efforts. Their commitment aims to enhance the lives of those impacted by Usher syndrome and drive forward the search for effective treatments.

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