Huntington's Disease Society
The Huntington's Disease Society of America (HDSA) is dedicated to improving the lives of individuals and families affected by Huntington's disease (HD), a fatal genetic disorder that leads to the progressive deterioration of physical and mental abilities. Founded in 1967 by Marjorie Guthrie, HDSA is committed to advocacy, research funding, and providing resources and support through a network of chapters and Centers of Excellence across the nation.
With a significant commitment to HD research, HDSA has invested over $20 million since 1999 towards finding effective treatments to combat the disease. The organization offers various resources, including support groups, educational programs for healthcare professionals, and opportunities for community involvement, helping to raise awareness and foster hope within the HD community.
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