American Porphyria Foundation

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4915 Saint Elmo Ave Ste 200
Bethesda, MD 20814
+1 (301) 347-7166
https://porphyriafoundation.org

The American Porphyria Foundation (APF) is a 501(c)(3) non-profit organization dedicated to enhancing the health and well-being of individuals and families affected by Porphyria. Through advocacy, research, and support services, the APF aims to improve awareness and understanding of this group of rare diseases.

In addition to providing resources for patients, the APF also engages healthcare professionals through education and guidelines related to Porphyria diagnosis and treatment. The foundation actively encourages involvement from the community, offering opportunities to donate, volunteer, or participate in research initiatives.

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