Melanin Children Matter

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3921 Hawthorne Dr

Owensboro, KY 42303

+1 (888) 877-0531

http://melaninchildrenmatter.org

Melanin Children Matter Inc. is a non-profit organization based in Owensboro, KY, dedicated to raising awareness and providing support for children with SPTLC2-associated pediatric ALS (Amyotrophic Lateral Sclerosis) and their families. Their mission is to create a world where every child, regardless of the rarity of their condition, has the opportunity to thrive.

Founded by Lakeia Nard, a mother of five, Melanin Children Matter Inc. was born out of her own personal journey with her son, King nazir Gates, who was diagnosed with the rare and devastating condition. Determined to prevent others from feeling the same sense of loneliness and helplessness, Nard established the organization to offer resources, support, and funding for research, with the aim of making a difference in the lives of children and families affected by rare diseases.

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