Bennett, Tonya

PMD Family Support, established in 1990 and located in Indianapolis, IN, is dedicated to assisting families impacted by Pelizaeus-Merzbacher Disease (PMD). The organization provides resources, information, and support for newly diagnosed individuals and their families, fostering a sense of community through shared experiences. In addition to offering educational materials, PMD Family Support organizes annual conferences, fundraising events, and family stories, creating opportunities for connection and advocacy. Their commitment to research and awareness helps improve the lives of those affected by PMD and its related conditions. Generated from the website