National Foundation for Extodermal Dysplasias

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[300 - 398] E Main St
Mascoutah, IL 62258

The National Foundation for Ectodermal Dysplasias (NFED) is a non-profit organization based in Mascoutah, IL. They empower and connect individuals and families affected by ectodermal dysplasias through education, support, and research.

NFED advocates for families affected by ectodermal dysplasias, working to close loopholes in insurance coverage for necessary medical and dental procedures. They also provide resources, support, and assistance to help individuals navigate their healthcare journey. Through their research initiatives, NFED has invested millions of dollars in research studies and trials to improve understanding and treatment options for ectodermal dysplasias.

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United StatesIllinoisMascoutahNational Foundation for Extodermal Dysplasias