Fdnow

Familial Dysautonomia Now Foundation (FD NOW) is dedicated to raising awareness and support for individuals affected by Familial Dysautonomia (FD), a rare genetic neurological disease that is life-threatening and present from birth. The foundation emphasizes the importance of research and treatment breakthroughs, facilitated by prominent researchers Dr. Berish Rubin and Dr. Sylvia Anderson, who are committed to improving the lives of those with FD.

Through various initiatives, including volunteer opportunities, fundraising events, and collaborations with the medical community, FD NOW seeks to provide assistance and resources to families impacted by this condition. Their mission focuses on transparency in research and the ongoing development of safe, lab-tested treatments for patients living with FD.

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