Cystinosis Research Network

The Cystinosis Research Network (CRN) is dedicated to accelerating the discovery of a cure for cystinosis, a rare genetic metabolic disorder that leads to the harmful accumulation of cystine in various organs and tissues. Through research funding, educational resources, and community support, CRN aims to improve treatment options and enhance the quality of life for those affected by this condition.

CRN actively engages with healthcare professionals and the public to raise awareness about cystinosis while providing scholarships and resources for individuals and families impacted by the disease. Their commitment to advancing research and fostering community connections is central to their mission of making lives better for those living with cystinosis.

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