This is a complex one for me. My family got involved with this organization back in 2001 because my wife had SMA and we had recently had our first child. She found them while doing research on...
Cure SMA
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Cure SMA is a leading organization dedicated to supporting individuals affected by spinal muscular atrophy (SMA) and promoting progress towards comprehensive care and treatment options. Their initiatives focus on community support, advocacy, research funding, and education for families and healthcare providers.
With a commitment to improving the lives of people with SMA, Cure SMA has achieved significant milestones, including the approval of three treatments and the implementation of newborn screening in 100% of the U.S. Additionally, they facilitate various events and research opportunities aimed at furthering the understanding and management of this progressive neurodegenerative disease.
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