Phace Syndrome Community Inc
PHACE Syndrome Community Inc. is an organization dedicated to supporting families and individuals affected by PHACE syndrome, a rare condition characterized by a range of vascular and other anomalies. They offer resources such as newsletters, research updates, and opportunities for individuals to get involved, fostering a sense of community and connection among those impacted by the syndrome.
Through initiatives like the PHACE Registry, educational support, and virtual meetings, the organization aims to raise awareness and provide valuable information about PHACE syndrome. They also engage in fundraising efforts and collaborate with medical professionals to enhance research and support for the community.
Generated from the website
Also at this address
You might also like
Partial Data by Infogroup (c) 2025. All rights reserved.