Phelan-Mcdermid Syndrome Foundation

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200 Capri Isles Blvd Unit 7F
Venice, FL 34292
+1 (941) 485-8000
https://www.pmsf.org

The Phelan-McDermid Syndrome Foundation, located in Venice, FL, is dedicated to supporting individuals and families affected by Phelan-McDermid Syndrome, a rare genetic disorder that impacts critical functions such as learning, communication, and basic daily living activities. Established by families with firsthand experience, the foundation fosters a sense of community through caregiver support groups, educational resources, and regional and international gatherings.

With a focus on care and research, the foundation aims to improve medical care and drive breakthroughs in treatment options for this complex condition. By facilitating family participation in research and providing a comprehensive resource library, the Phelan-McDermid Syndrome Foundation strives to bring hope, help, and answers to those navigating the challenges of this life-altering diagnosis.

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