Mathew Forbes Romer Foundation

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9858 Glades Rd
Boca Raton, FL 33434

The Mathew Forbes Romer Foundation (MFRF), based in Boca Raton, Florida, is dedicated to raising awareness and funding for research initiatives aimed at preventing and curing fatal children's genetic diseases of the brain. With a mission that encompasses research, education, and genetic screening, MFRF has successfully raised approximately $2.5 million to support projects aligned with its vision.

MFRF has made significant strides in gene therapy trials and education, providing critical resources for families affected by these devastating conditions. Despite the progress, the organization acknowledges the ongoing need for earlier detection methods and expanded treatment availability to better serve affected children and families.

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