Joshua Frase Foundation

124 Crossroad Lakes Dr
Ponte Vedra Beach, FL 32082

The Joshua Frase Foundation, located in Ponte Vedra Beach, FL, is dedicated to providing research and support for individuals affected by Myotubular Myopathy and related myopathies. The foundation aims to enhance the quality of life for families through resources, advocacy, and the promotion of scientific advancements in the field.

Through initiatives like the International Family Registry and the Joshua Frase Fellowship, the foundation fosters collaboration among researchers and clinicians to drive breakthroughs in understanding and treating these disorders. With a focus on community engagement and awareness, the foundation also offers support for families navigating the challenges of these rare conditions.

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