Costello Syndrome Family Network

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1702 Tyndall Dr
Panama City, FL 32401

The Costello Syndrome Family Network (CSFN), founded in 2001, is a nonprofit 501(c)(3) organization dedicated to supporting families affected by Costello syndrome. Their mission encompasses promoting early and accurate diagnosis of the condition, raising awareness, and advancing research into its causes and manifestations.

CSFN provides essential resources and support to ensure individuals with Costello syndrome and their families can lead fulfilling and healthy lives, reaching their maximum potential. The organization also hosts conferences, such as the upcoming 2025 International Costello Syndrome Family Conference in Orlando, Florida, fostering community and shared experiences among families.

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