Alpha-1 Foundation Inc
The Alpha-1 Foundation Inc, based in Miami, FL, is dedicated to enhancing research and support for individuals affected by Alpha-1 Antitrypsin Deficiency, a genetic condition that can lead to serious lung and liver diseases. With over $100 million invested in research and related programs, the foundation plays a pivotal role in advocating for patients and funding critical studies aimed at finding effective treatments and ultimately a cure.
In addition to research initiatives, the foundation provides resources such as educational scholarships, support groups, and advocacy tools, empowering the Alpha-1 community to live healthier lives. Through events like the National Conference and fundraising activities, the organization fosters a strong network while raising awareness about the disorder and the importance of supplemental oxygen access for those in need.
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