Alpha-1 Association

The Alpha-1 Association, based in Miami, FL, is dedicated to supporting individuals living with Alpha-1 Antitrypsin Deficiency through a range of comprehensive resources and community engagement initiatives. Their network of experienced AlphaNet Coordinators, who also have Alpha-1, provides personalized guidance and serves as a vital link to the latest medical information and treatment options.

By joining AlphaNet, individuals gain access to a wealth of knowledge, including the Big Fat Reference Guide, which serves as an extensive resource for understanding and managing Alpha-1. The organization emphasizes collaboration and advocacy to improve the lives of those affected by this genetic condition, fostering a supportive community for patients and their families.

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