Cornelia de Lange Syndrome Foundation

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302 W Main St
Avon, CT 06001
+1 (860) 676-8166
http://www.cdlsusa.org

The Cornelia de Lange Syndrome (CdLS) Foundation, located in Avon, CT, provides essential services to individuals affected by CdLS and other isolating genetic conditions. With a commitment to reaching over 3,500 individuals and their families, the Foundation offers support, resources, and opportunities for advocacy and community engagement.

Dedicated to advancing knowledge and care related to CdLS, the Foundation collaborates with professionals in medicine and education while also facilitating research efforts to enhance understanding of the syndrome. Through various initiatives, including support services for families, educational programs, and fundraising activities, the CdLS Foundation aims to create a more informed and supportive environment for those impacted by this rare genetic disorder.

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