Cornelia De Lange Syndrome

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30 Tower Ln Ste 400
Avon, CT 06001
+1 (860) 676-8166
https://www.cdlsusa.org

The Cornelia de Lange Syndrome (CdLS) Foundation is dedicated to providing comprehensive support and resources for individuals affected by this rare genetic syndrome, which occurs in approximately 1 in 10,000 live births. With a mission to establish community, educate families, and enable advocacy, the Foundation currently serves over 3,500 individuals and aims to reach even more who may be unaware of available services.

In addition to offering a wealth of services at no cost to families and caregivers, the Foundation actively engages in research to advance knowledge about CdLS. They provide essential resources for professionals and host opportunities for families to connect, share stories, and participate in various community initiatives.

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