Xp Family Support
Xp Family Support Group (XPFSG) is dedicated to improving the quality of life for individuals affected by Xeroderma Pigmentosum (XP) and other UV light conditions. This rare genetic disorder affects approximately one in a million people in the U.S., leading to extreme sensitivity to sunlight and an increased risk of skin cancer.
The organization provides vital resources and support for XP patients and their families, facilitating education, fundraising, and community engagement to meet the challenges posed by the condition. Through various initiatives, XPFSG aims to expand its reach, enhance awareness, and foster a collaborative environment for all those impacted by XP.
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