Rare-X

Website
28 Argonaut Ste 150
Aliso Viejo, CA 92656
https://rare-x.org

RARE-X is a 501(c)(3) non-profit organization based in Aliso Viejo, California, dedicated to transforming rare disease research and treatment by empowering patient communities to gather, structure, and share their health data. With a commitment to diversity, equity, and inclusion, RARE-X provides a collaborative platform that enhances access to critical data for researchers and biopharma, ultimately accelerating diagnosis, understanding, and the development of treatments across over 10,867 rare diseases.

The organization leverages advanced technology from the Broad Institute of MIT and Harvard to enable secure and responsible data sharing, ensuring that patient contributors maintain ownership and control over their information. By focusing on meaningful collaboration and comprehensive governance, RARE-X aims to break down data silos and foster a global ecosystem that benefits all stakeholders involved in rare disease innovation.

Generated from the website

Also at this address

Own this business?
See a problem?

You might also like

Business services, nec, nec, Trade associations

Octane Foundation-Innovation

Octane Foundation-Innovation, based in Aliso Viejo, CA, is a dynamic organization dedicated to fostering growth and innovation in the Southern California tech and medtech business ecosystem. Through their top-performing accelerators, such as LaunchPad SBDC Accelerator, and signature events like the Tech Innovation Forum, Octane Foundation connects entrepreneurs, investors, and partners to drive job creation and economic development in the region. Since 2010, Octane Foundation has facilitated over $5.9B in funding for more than 1,573 companies, resulting in the creation of 28,732 jobs. Their commitment to diversity and inclusiveness, as demonstrated through initiatives like the Octane Insperity Scholarship program and Women Leaders of Octane, underscores their mission to empower tomorrow's leaders and build a thriving business community in Southern California.Generated from the website

NFP Retirement Inc

NFP Retirement Inc is a financial services firm based in Aliso Viejo, CA, specializing in retirement planning and investment management for individuals and businesses. With a focus on long-term financial security, NFP Retirement Inc offers personalized strategies to help clients achieve their retirement goals and navigate the complexities of financial planning. Generated from their business information

Straight A Guide Foundation

The Straight-A Guide Foundation, based in Aliso Viejo, CA, is a nonprofit organization established in 2009 with a mission to build safer communities by providing self-directed programs to teach and inspire individuals in prison. Through collaborations with local businesses, the foundation offers resources for people to advocate for themselves and solve personal problems, ultimately preparing formerly incarcerated individuals for successful reintegration into society. Led by a dedicated team including self-made businessman William Wilson and Executive Director Sharadora Leslie-Sisco, the foundation has impacted over 100,000 individuals in prison annually through educational materials and job opportunities. By supporting the Straight-A Guide Foundation through donations or purchases, individuals contribute to the organization's efforts in improving outcomes within the criminal justice system and empowering individuals to lead law-abiding, contributing lives.Generated from the website
United States›California›Aliso Viejo›Rare-X

Partial Data by Infogroup (c) 2024. All rights reserved.