Nbia Disorders Associates

The NBIA Disorders Association, based in El Cajon, CA, has been dedicated to supporting families affected by Neurodegeneration with Brain Iron Accumulation (NBIA) disorders for over 29 years. With a mission to raise awareness, provide refuge, and fund research initiatives globally, the organization has invested $2.8 million in research funding since its inception.

Led by President Amber Denton, the association fosters collaboration among researchers, clinicians, and families while facilitating informative family conferences and enhancing community outreach. With a strong focus on advocacy and education, the organization operates alongside an engaged board and dedicated volunteers to drive progress toward effective treatments and ultimately cures for NBIA disorders.

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