Madisons Foundation

Madisons Foundation, founded by Marcy Smith in response to her daughter's rare disease diagnosis, served as a vital resource for parents seeking information and community support for children with rare pediatric illnesses. Over its seventeen-year history, the foundation successfully connected hundreds of thousands of families, adapting to the evolving digital landscape and the rise of social media.

As the availability of information and support has grown significantly in recent years, Madisons Foundation has announced its decision to close, paving the way for new organizations to take on the mantle of support for affected families. The foundation remains proud of its contributions and has provided links to other resources that continue to assist parents navigating similar challenges.

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