Kimberley Carrion

The International Pemphigus & Pemphigoid Foundation (IPPF) is dedicated to improving the quality of life for individuals affected by pemphigus and pemphigoid through education, advocacy, and research. They provide resources such as peer coaching, clinical trial information, and support groups to empower patients and caregivers in managing these rare diseases. In addition to patient support, the IPPF actively engages in research initiatives, including the Natural History Study, to enhance understanding and treatment of pemphigus and pemphigoid. Their advocacy efforts aim to influence legislation and funding that benefits the community, while their awareness programs focus on improving diagnosis times through outreach to healthcare professionals. Generated from the website