International Pemphigus & Pemphigoid Foundation
The International Pemphigus & Pemphigoid Foundation (IPPF) is dedicated to improving the quality of life for individuals affected by pemphigus and pemphigoid through education, awareness, advocacy, and research. They offer a range of resources including patient stories, peer coaching, and information on treatment options and clinical trials.
Additionally, the IPPF actively engages in research initiatives, such as the Natural History Study, to collect patient data that can lead to better treatments and earlier diagnoses. Their advocacy efforts aim to influence legislation and policies that benefit the pemphigus and pemphigoid community, while their awareness programs focus on the importance of accurate biopsies for undiagnosed patients.
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