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The Forgotten Diseases Research Foundation (FDRF) is a nonprofit organization based in Santa Clara, CA, dedicated to understanding and providing resources for rare diseases. Through their comprehensive online tools and extensive information, including photographs and growth charts, FDRF aims to assist patients, families, and researchers in navigating the complexities of these conditions. In collaboration with esteemed institutions like the A-T Clinical Center at Johns Hopkins University, FDRF is actively conducting research projects, including studies on ataxia-telangiectasia and the development of global growth charts. Their work not only seeks to improve diagnosis and treatment options but also to enhance understanding of how these rare diseases progress across diverse populations. Generated from the website

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