Charitable organization
Ippf
The IPPF is dedicated to improving the quality of life for individuals affected by pemphigus and pemphigoid through education, advocacy, and research. They provide a range of resources including patient stories, peer coaching, and information on clinical trials to support patients and caregivers in managing these rare diseases.
In addition to patient support, the IPPF actively engages with healthcare professionals to enhance diagnosis and treatment protocols, emphasizing the importance of accurate biopsies. Their advocacy efforts aim to influence legislation and funding that benefits the pemphigus and pemphigoid community, fostering a collaborative environment for research and awareness. Generated from the website