Alport Syndrome Foundation Inc
The Alport Syndrome Foundation Inc, based in Phoenix, AZ, is dedicated to raising awareness and providing information about Alport syndrome, a genetic condition characterized by kidney disease, hearing loss, and eye abnormalities. The foundation highlights research advancements, including new gene therapy studies and developments in potential treatments for individuals affected by this condition.
Committed to supporting patients and families impacted by Alport syndrome, the foundation emphasizes the importance of early detection and genetic understanding of the disease. Through collaboration with researchers and biotechnology companies, they aim to improve treatment options and outcomes for those living with Alport syndrome.
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